Guestbook
You may use this Guestbook to show your support for the family
and send them greetings by adding an entry below.
Susie A.
Thu, 05/20/2010 - 7:29pm
Carol B.
Thu, 05/20/2010 - 6:21pm
Prayers and hugs. Hang in there. God is still in the miracle working
business. No one knows but God what the outcome will be. Have faith, and keep
BELIEVING. Praying for brighter days ahead. You are really good at seeing the
baby steps, no matter how tiny they may be. Keep looking ahead for those tiny
steps, those small encouragements.
Susan Imle Bollfrass
Thu, 05/20/2010 - 12:31pm
When kevin called me at nine with the initial, "I am calling to give you a
heads up..." I thought he was warning me that Caroline or Oliver were
coming down with Adam's bug, and I was caught totally off guard with the news
he was sharing. The news from yesterday was so wonderful and we went to bed
last night feeling down right euphoric for Cooper and for you. I am still
trying to absorb all of this and put it into the proper perspective. It
sounds wierd, but I am not concerned about a permanent colostomy because
Cooper can live without a colon. I am worried about all of the fecal matter
that has gotten into his abdominal cavity and hope the doctors can get that
all cleaned up before they close him for the third time, and I am worried
about three major abdominal surgeries in less than a month. Cooper simply
has to catch a break at some point and be able to heal, re-gain his strength
and energy and be able to enjoy his Miraculous transplant and life. Sarah,
you also need days on end of only good news....I know how I am currently
feeling, and so I know you are suffering. These extreme highs and lows are
tough, but I always keep in mind that our highs and lows are nothing, when
compared to what Cooper is having to endure. As I have watched Cooper
battle, time after time, through bacterial and yeast infections, painful
procedures, and wearing a 22-pound back pack filled with his TPN and fluids,
day after day, without complaint, and with his sunny disposition, I have
learned amazing lessons about what life is really all about and what never
giving up really means. Grown men would weep and beg for mercy if they had
to walk the journey that Cooper has been given, and they would complain every
step of the way, asking, "Why me?" Cooper should receive the Congressional
Medal of Honor for Bravery, Valor and Heroism in battle. Our precious
Cooper has always accepted his life and he makes the most of every day...I
long to hear that marvelous belly laugh of his when he is so tickled by
someting that he literally falls over laughing. The thought makes his "Mei"
smile. Cooper never questions and says, "Why? Why me?" so I am not going to
do that either. I BELIEVE that God created Cooper and made him special and
sent him to be loved and adored and protected by a most amazing Momma and an
incredible Dad. He added three siblings, who are as special as Cooper, to
bring joy and love to his life. He also Blessed Mei and Happy by allowing
us to be Cooper's maternal grandparents and Kevin's parents to be his
paternal grandparents. His Aunts and Uncles and all of Cooper's cousins
adore Cooper and Cooper loves the time he gets to spend playing with
them. Then God sent true friends into all of our lives, who have helped us
during scary times and celebrated with us during happy times....but they
never turn away from us and their prayers and their love are helping carry
us as we travel with Cooper on his Transplant Journey. He sent brilliant
and compassionate doctors who are using their vast knowledge to help give
Cooper a better life and kind and caring nurses to keep Cooper on the road to
recovery. Still God was not through, and He has sent us, and continues
sending us, armies of people...acquaintances, friends of friends and total
strangers to join their voices in prayer and to work with us to help Cooper
in so many ways. All of this is due to one little boy...a little boy with a
snaggle tooth, a beautiful smile, a back pack, and a zest and joy for life
that has drawn all of these people to him. Cooper is a Gift from God and
Cooper is a Miracle. I know, and I Believe, that God is keeping watch over
this special child He created, and that He will continue to carry Cooper
through the hard days and will heal Cooper so that he will return to his
home in Spring where he can ride his green jeep, play with his toys, run in
his yard, sit at the family dinner table and eat real food, and laugh
joyously as he plays with his sister and brothers and his dogs. This I
BELIEVE!!! Sarah, I am praying for Cooper and for you and I am holding you
both in my heart. I love you more than life itself! Thanks be to God, from
whom all Blessings flow! >j< Momma FROG
DONNA IRIZARRY
Wed, 05/19/2010 - 5:34pm
LOVE, KISSES, HUGS, PRAYERS ARE ALL WITH YOU GUYS...........WE BELIEVE AND
KNOW GOD IS IN CONTROL........WE LOVE YOU AND KNOW THERE ARE BRIGHT DAYS
AHEAD............LOVE......DONNA & JEFF
Susan Imle Bollfrass
Mon, 05/17/2010 - 11:06pm
As I keep telling everyone...any time there is good news, a moment of levity,
someone reaching out like May K...for me, these are all little glimmers of
Light and Love sent to us from God. I just read your blog and I am feeling
pretty positive; however, this past week we have just emerged from was such a
scary roller coaster ride that I am not allowing myself to say that we have
turned the corner. I am learning that surprises, both good and not so good,
are around each corner. Even so, I feel good tonight...Cooper's pain is
being managed, he ate four Cheetos, he walked, he wants to go to the toy room
tomorrow to use the computer and he tinkled in the bedside "YOUNUL", as Adam
called it. Last night at this time and all day you were terrified, but the
news was not horrible....so we say "Thanks be to God!" and we move toward
tomorrow. A new day will bring us along the next leg of Cooper's
Transplant Journey...and no matter what the news, we will continue to
BELIEVE and to cheer Cooper on as he battles through this storm. Cooper has
never quit and never turned away from a good medical fight...he is a
warrior...he is Super Cooper...he is The Coopernator with the
Frankenbelly...he is a WINNER! You are not alone...God is with you and Cooper
and He is watching over you. You are surrounded by amazing doctors and
nurses and all around the world there are people...family, friends, parents
of sick children and total strangers who are lifting up their voices in a
common prayer....healing and comfort for Cooper and for you. These prayers
for Cooper are powerful and he is going to get through all of this....he is
going to return to Edsall Drive sooner, rather that later, and he will drive
that green jeep, hitting curbs and careening into cars and the legs of anyone
who is brave enough to be in the cul de sac. Hold on to that vision of
Cooper, driving his brother Oliver and how they were both laughing
hysterically....by this time next year, you and I will be watching the
"Squealquel!" As I have said before, Disney World should build a new roller
coaster called "The Coopernator"....ride it, and you will believe in
God!!!! My heart is filled with pride in the daughter I raised and endless
love for you and Cooper. My prayers continue.............All my
love....Momma/Mei
bestfriend
Mon, 05/17/2010 - 3:04pm
Sarah, It's been awhile since we talked. I've been reading all your
blogs and keeping up to date with Cooper and your family. I've not called
because it seems you have your hands full there. I am amazed at your strength
and courage with the doctors and with Cooper. I'll continue to keep you in
my prayers. For now, I'll pray that you get some good news today about the
antibiotics and the rejections. God's peace and blessings. Jan Alexander,
Trinity
Beth Baker
Mon, 05/17/2010 - 6:01am
Praying for today's busy schedule to go smoothly and for progress to be made.
Praying for a pain free day for Cooper and for strength for all of you. We
just got back from our little boy's Make a Wish trip to Disney, it was
wonderful, I am praying for you to be able to make that trip soon. It was a
true blessing, and your Cooper so deserves to enjoy a wonderful week away!
Danica Kilander
Sat, 05/15/2010 - 11:42am
From the farthest northwest corner of the US, prayers of a calm and
uneventful weekend are heading your way. Faithful prayers of Strength,
Serenity and Joy are pouring over you, ...and for you little Coop, many
prayers of healing. Cooper, I love reading that you are a fighter; maybe it's
not the best time for your body to start fighting, but it's Amazing News that
it's found the strength somewhere to say "I Am Not Giving Up, I'll just Fight
Harder". That is my mantra too...I'm a fighter like you Coop. I fight for
Olivia Cook... one of the COTA children here in Bellingham. Der campaign is
called LivLife and I am the Community Coordinator as well as Olivia's kidney
donor in July. Knight family, you have our hearts and prayers. If there is
anything else you need, Please Please Call Us. (360)393-9133.
May Kamalick
Sat, 05/15/2010 - 8:14am
Sarah: Your story (and Cooper's) is a lesson in patience, faith, and
dedication. I will keep Cooper in my prayers and put him on every prayer list
I can think of. I remember you and your mom from St. Dunstan's and Klein.
Your perseverence is amazing. We are now in the DC area. let me know if there
is anything I can do from here, other than donations and prayers. Your
writing and your mom's message are inspiring and touching. May
AllieB
Sat, 05/15/2010 - 1:02am
What a strong support system and even stronger little boy. Cooper and
family have and will continue to be in my prayers. Continue to hold hope
and may God bless you all.

