Thank God for Friends 03-07-10

It is there midnight phone calls that pull me up when I need it most.  We have been richly blessed with friends and family during this entire ordeal with Cooper.  But some of the most special people in our lives right now are those friends we have made along this journey.  While all of our friends and family are always there for us and so willing to do anything and everything to help us through every step of the way, it is the other parents that are walking this same journey who have gotten us through some of the hardest times.  And right now, I would say we are in one of those times.  The ironic part is, Cooper is doing very well right now.  It is us, his parents, who are in need of a little extra TLC at the moment.  The appointment with Dr. Koenig opened up a can of worms that we knew would most likely be opened when we met with her, but that we still hoped would never have to be opened.  Some of the worst of our fears are centered around Cooper's transplant that we still believe is his best hope at a more normal life.  And we are feeling all of these fears while still trying to maintain a brave face.  We have family in town and the last thing we want to do is be a bunch of Debbie Downers and unload our fears and concerns on all of them while we try to have a fun time visiting.  But keeping on that happy air is not easy.  And that is when the midnight phone calls from our friends who have been walking this same path mean the most.  How did Missy know that I needed to talk in the middle of the night last night?  She gets it.  She gets it in ways that I wish no one else did.  Her little boy suffers from many of the same odd symptoms as Cooper.  And her family has been an inspiration and a blessing to our family.  It is rare for us to know someone else who just gets every little thing that we are going through.  They don't think twice about me having to hop up from dinner to mix Cooper's TPN.  They didn't think it was weird to have an entire refrigerator stocked with nothing but TPN, IV fluids, and medications.  They share in our frustrations and heartaches when our babies have to suffer.  And Missy and Ben are guiding us through this new probable diagnosis for Cooper because they have had to hear the same things we are hearing now.  They have even had the same battles with genetics at TCH that we have had and they, too, found hope and compassion in Dr. Koenig.  And because we are so blessed with friends like The Knights, we are able to go about our days like normal people do - happy and calm and ready to fight for our kids.  Those middle of the night phone calls keep us going when we think we can't.  They make it possible for us to unload with someone who understands completely and doesn't think you are crazy for feeling sad about something you aren't even 100% sure yet that you need to be sad about.  We are so blessed and now I am feeling better about it all because I know that, no matter what, we are not alone.  And I know that we never were, but having someone who gets it makes it all the easier to deal with so much.  Please continue to pray for Cooper to stay very healthy, for tests to answer the questions that we still have, and for Cooper's CALL to come NOW!